Wednesday, August 27, 2008

News could be better

The news on Ms. N wasn't horrible today, but it could have been better. The head u/s showed the ventricles have grown. Neurosurgeon is being called back in. The LP went fine and is looking much better. The proteins are higher (which is good), but there are still signs of infection. The eceocartigram showed the debris still there and specialist doesn't think it will be going away any time soon if ever. Neonatologist is going to talk to the immunity docs (another immunity test is going to be done tomorrow) and the disease control specialist about all these tests, then come up with a course of action. I think it will be at least another week of antibotics and recheck everything, but what do I know. I'm just the mom.

First breast feeding attempt today was a total bust. N was just too tired after a morning of procedures. She wouldn't even take the bottle from me, just slept in my arms as she likes to do and I handed her off to the nurse to be the bottle pusher. A bit disappointing, but as I told the nurses I'm in it for the long haul and the timing today was just plain bad. I wished I could have staid later or could go back, but alas, it is not to be and I'm just tired today...enough that a nurse commented. Sigh. I need to make myself go to bed when Max does since I'm up when he is and several other times during the night.

ps. Week 11 pics will be coming, just need to pump real quick and get to my appointment so no time now and I haven't even taken any of Mr. R yet.


Laura in L.A. said...

Debbie, I'm sorry that the news on Miss N wasn't what we were hoping for today. I will be praying that she continues to make progress, and is on her way home to you.

You're doing an amazing job, handling all this. I pray that N is home soon so that your life can get easier.

Love, Laura

Anonymous said...

Poor kid...I"ll keep her in my prayers.